Tag: Resources

For those keeping track

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For those keeping track, so far I have found:

  • no books at our local library
  • one website (www.thefhfoundation.org) focusing on providing information for the patient
  • three Facebook pages/groups for the patient and/or caregiver of those with FH or HoFH
  • Additionally, most of the information I have found is highly focused on FH with very little information about HoFH specifically

Good news though!  The FH Foundation is currently in the process of creating a community for those affected by HoFH.  More on that soon!