Month: January 2020

Thank you to everyone who has signed up! There are still a few open dates if you feel up to helping. ❤️

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Avery’s Fight
A meal train has been set-up to help our family when we return home. You can sign up at this link (please SHARE):

https://ift.tt/2SI9NOj
More info @ https://ift.tt/2SI9NOj
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
January 26, 2020 at 01:57PM

We have received hundreds of new “Likes” over the past week so we thought we’d share this video from when Avery was 8 years old. The video was made to raise awareness of all #rarediseases. Avery had never done this type of dance before nor ever done a solo. We’re so proud of her. ❤️ #KnowFH #HoFH #zebrastrong 🦓

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Avery’s Tribute for Rare Disease Awareness to Fight Song by Rachel Platten
Avery Watts was diagnosed with the RARE DISEASE Homozygous Familial Hypercholesterolemia (HoFH) at the age of 6. When she was diagnosed, her cholesterol leve…
More info @ https://youtu.be/LmKnEXGFoik
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
January 08, 2020 at 11:59AM

Listening to this song and thinking about what a true Warrior Avery is! ❤️ (update to come — waiting to do Rounds this morning before we update).

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Demi Lovato – Warrior (Official Video)
#DemiLovato #BestMusicVideos #HottestMusicVideos #Vevo Demi Lovato “Tell Me You Love Me” DELUXE: https://ift.tt/2x0sItZ Demi Lovato “Tell Me Y…
More info @ https://youtu.be/74aOxH4R5Ow
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
January 07, 2020 at 07:29AM

Here’s a piece FOX did on Avery a couple years ago. Thought some of our new followers might like to learn more about Avery’s condition, homozygous familial hypercholesterolemia and why we are currently in the hospital after undergoing two open-heart surgeries in less than 25 hours.

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Kids & Cholesterol: Avery’s Story
A local doctor is on a tireless battle to get parents to have their children tested for heart disease at a younger age. Before it becomes a silent killer. Me…
More info @ https://youtu.be/GDvNrCwsjuI
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
January 05, 2020 at 09:55AM

A meal train has been set-up to help our family when we return home. You can sign up at this link (please SHARE): https://ift.tt/2SI9NOj

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Meal Train for The Watts Family
Avery is having open heart surgery on January 3rd at Boston Children’s Hospital. She is expected to be in the hospital in Boston about 14 days and then will transition home for several more weeks/months of recovery. Meals and restaurant gift cards will help ease her transition back home.
More info @ https://ift.tt/2SI9NOj
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
January 01, 2020 at 07:13AM