Month: February 2020

♥️🦓 PLEASE SHARE!!! ♥️🦓

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The FH Foundation
For Avery #HoFH means to have open heart surgery and a heart attack at age 11. This #RareDiseaseDay, read and share Avery’s story to help raise awareness of HoFH.

Thank you to Avery’s Fight for sharing your story. #KnowFH

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More info @ https://ift.tt/2PApsg1
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 29, 2020 at 01:03PM

I spy a cutie in this video! ♥️🦓 #KnowFH #HoFH

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Know HoFH – a Rare Form of FH
There are two forms of Familial Hypercholesterolemia (FH): Heterozygous Familial Hypercholesterolemia (HeFH) and Homozygous Familial Hypercholesterolemia (Ho…
More info @ https://youtu.be/XB40vNasYhI
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 28, 2020 at 12:43PM

Please help us raise awareness and show Avery how many people are out there supporting her by wearing your ❤️AVERY’S FIGHT❤️ t-shirts this Friday AND/or Saturday for Rare Disease Day! Please post pictures and TAG US on social media!!! ❤️❤️ …”together we can do so much….”

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Supporting Avery’s Fight on Rare Disease Day 2016
This video was made to showcase all the support our daughter, Avery, received on February 29th for Rare Disease Day. Thank you to everyone who purchased shir…
More info @ https://youtu.be/7QIxCuzdgXM
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 26, 2020 at 02:36PM

This is exciting and definitely something to watch! ♥️

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Breakthrough bileaflet heart valve could be the only one a child needs – Boston Children’s Discoveries
A new bileaflet heart valve could spare children from multiple operations to replace outgrown valves. The design mimics that of the venous valve in the leg.
More info @ https://ift.tt/2HHIVaf
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 21, 2020 at 02:21PM

Good article…. “People think because his surgery is over that we’re all just fine now. Almost like it never happened. And that’s OK. I don’t want my son to be considered fragile or broken; he’s not. Far from it. But, just for the record, I’m not always fine. I have triggers. And they are everywhere. The immediate anger is gone, but it’s always there just below the surface. It sits dormant with the mental and emotional scars that I will have for all of my days. People have told me I’m strong. I’m not. I’m a con artist. I’m good at faking the strength. I’m just a regular mom who happens to be in complete awe of her son. How could I not be? If there is any strength, it’s a byproduct of watching him.” https://ift.tt/2gtXGQN

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I Can’t ‘Get Over’ the PTSD From My Child’s CHD Surgery
“People have told me I’m strong. I’m not. I’m a con artist. I’m good at faking the strength.”
More info @ https://ift.tt/2gtXGQN
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 13, 2020 at 05:11PM

Thank you @EUMCHagerstown for honoring Avery with this beautiful song and message at this morning’s service! Avery loved the beautiful song the children sung and loved seeing your parishioners in their Avery’s Fight t-shirts! Listen to the message starting at 16:50 (song preceded the message). ♥️ #lovewins #loveeveryone #blessed

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Emmanuel
02/09/20 “Love… Heaven Style”
More info @ https://ift.tt/375RgyY
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 09, 2020 at 02:03PM

It’s here!!! Avery is featured in Showstoppers Magazine (print and online) as the only dancer chosen to represent our great state of Maryland! (Get your copy at Barnes and Noble). Thank you Showstopper! What an honor! ❤️

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Maryland: Avery Watts | Showstopper Magazine Online
“Although it’s been scary to learn I [have] a rare disease, dance has helped me by giving me an outlet to express myself.”
More info @ https://ift.tt/3b89OBQ
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 04, 2020 at 04:18PM