National Organization for Rare Disorders, Inc. (NORD)
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September 28, 2019 at 01:59PM
Month: September 2019
Watch this potential superbowl commercial created by my friends at Uplifting Athletes and featuring our rare family. Watch and vote, and see the final product on 03.06.20 #wetacklerare
#WeTackleRare
Do you dream of a world where scientists and doctors are elevated to the same level as professional athletes? So do we…
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Automated post from Avery’s Fight – https://ift.tt/1YdH55n
September 27, 2019 at 09:40AM
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Rare Disease on The Mighty
“Alive. She wants to be alive when she grows up.”
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Automated post from Avery’s Fight – https://ift.tt/1YdH55n
September 16, 2019 at 07:23PM
This is our friend Natalia. She has HoFH like Avery (and is also a fellow dancer) and is literally in the fight of her life, now trying to fund a liver transplant. Please help if you can by donating and/or sharing.
Click here to support Transplant Today 4 Talias Tomorrow organized by Natalia Hester
Natalia Hester Transplant Today 4 Talias Tomorrow Hi, my name is Natalia and I am a 29 year old dance instructor fighting for my life. I’m in desperate need o
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Automated post from Avery’s Fight – https://ift.tt/1YdH55n
September 01, 2019 at 02:24PM
Avery's Fight 