from Avery’s Fight https://bit.ly/3oS4XAf
Happy International Dance Day! #internationaldanceday
Category: NewFromFacebook
New at Little Bit
from Avery’s Fight https://bit.ly/43Xcei9
For the past several years I have been working with FH Europe – The European FH Patient Network as an HoFH Ambassador. I’ve had the opportunity to share Avery’s story multiple times on an international level, take part in many webinars and Zoom meetings with other HoFH Ambassadors, consult with pharmaceutical companies on marketing initiatives and educational pieces, etc. As you know, I love sharing our story and raising awareness of HoFH and I’m so thankful to FH Europe for providing me these opportunities, especially because I’m a U.S. citizen! If you haven’t yet, go like them on social media. They share a lot of great information and you can keep tabs on when I may be speaking next!
#averysfight #hofh #fheurope #HoFHambassador #heartdisease
#congenitalheartdefects #highcholesterol #heartattack #knowfh
#fheuropeambassador
New at Little Bit
from Avery’s Fight https://bit.ly/43U461H
I’m so excited to share that I have been invited to speak at the World Heart Federation’s “World Heart Summit” in Geneva, Switzerland. In just under a month I will be speaking as part of their Pre-Summit Program at the Rare Diseases Forum. Avery will be joining me as well at the summit and is looking forward to sharing her perspective.
Thank you FH Europe for facilitating the opportunity for me to share on a global level. I am so honored to be speaking at such a prestigious event!
#averysfight #hofh #fheurope #HoFHambassador #heartdisease
#congenitalheartdefects #highcholesterol #heartattack #switzerland
#worldheartsummit
#worldheartfederation
New at Little Bit
from Avery’s Fight https://bit.ly/3ogN8KQ
A few months ago I was contacted by Leben Mit, a German company, who wanted to do a piece on Avery for their upcoming “Living with Rare Diseases” article. It was just published and I’m told should reach 10 million readers. We’re so grateful for the opportunity to keep raising awareness of #hofh! Here’s a link to the online article: https://bit.ly/3USlUqd
Avery is also featured on their website: https://bit.ly/3o9uvZ7 and on page 8 of the E-Paper: https://bit.ly/3UFKJFK
So, who knows German? 🤷🏼♀️
@lebenmit_magazin
#HoFH #averysfight #heartdisease
#raredisease #highcholesterol
#HoFHambassador
Avery's Fight 