Here’s a little video Mind+Matter US put together of a day of Avery’s life. Enjoy! https://ift.tt/3r2xLCg

mindplusmatter_us on Instagram: Meet Avery of @averysfight, the bright young lady putting up the biggest fight against homozygous familial hypercholesterolemia, or HoFH.…
Black Box • Spring Time
More info @ https://ift.tt/3b2p59n
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 28, 2021 at 04:20PM

Discouraging to read this morning that this drug is going to be priced at an average of $450,000/year. Gulp. Talk about a treatment barrier. 💔 https://ift.tt/2Niz7tE

Regeneron antibody earns nod for rare cholesterol disorder — but it ain’t cheap
Regeneron has a new approved drug to add to its stable of monoclonal antibodies. The FDA gave the thumbs-up to the biotech’s evinacumab, to be called Evkeeza, as a supplement to other LDL-lowering treatments for the rare genetic disorder homozygous familial hypercholesterolemia. Evkeeza has been i…
More info @ https://ift.tt/3jJk7kH
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
February 12, 2021 at 08:07AM