The February Day That Makes Me Proud to Be the Mom of a Child With Rare Diseases
It’s such an important day.
More info @ http://ift.tt/1WOG53g
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 27, 2016 at 07:13PM
Month: January 2016
Michelle
More info @ http://thndr.me/xM53ps
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 27, 2016 at 10:46AM
I could have written this myself. Deeper then just the title of the article. #AverysFight
When the Support After Your Child’s Rare Disease Diagnosis Dwindles
“No one really understands…”
More info @ http://ift.tt/1OXEhzG
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 26, 2016 at 07:50PM
Only a few more hours to place your apparel orders to support #AverysFight! We can’t wait to see everyone in their shirts on February 29th for #RareDiseaseAwarenessDay! #KnowFH
Avery’s Fight Apparel Fundraiser – KIDS
Show your support for Avery and the whole Watts family with these great apparel items. Proceeds will help the family and the cause. Seven-year-old Avery was diagnosed last year with Homozygous Familial Hypercholesterolemia (HoFH), a rare and serious genetic disease, which causes her cholesterol lev…
More info @ http://ift.tt/1PybKGw
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 26, 2016 at 05:45PM
Just ordered our #AverysFight shirts for #RareDiseaseDay2016! I can’t wait to see Avery’s beautiful smile when she see’s everyone wearing shirts for her! Thank you to everyone who has ordered! Tomorrow is the LAST DAY to order your shirts! #KnowFH
Michelle
More info @ http://ift.tt/1PybKGw
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 25, 2016 at 06:52PM
#RareDiseaseDay2016 is February 29th! Order your #AverysFight apparel at this link, take a photo of you or your group on #RareDiseaseAwarenessDay and post it to social media (#Facebook, #Twitter, #Instagram). Send me your photos and I’ll post them on my blog as well as in all of my social media accounts. Help us spread awareness! How far can we reach? #KnowFH
Avery’s Fight Fundraiser
Show your support for Avery and the whole Watts family with these great apparel items. Proceeds will help the family and the cause.
More info @ http://ift.tt/1OLvPZE
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 11, 2016 at 08:00AM
PICTURE THIS: your office, team, class, scouts, church group, restaurant, school, family, friends, etc. wearing their #AverysFight t-shirts and holding a flyer for joining hands around the world on FEBRUARY 29TH for #RareDiseaseDay2016! Wouldn’t it be awesome to see how many people could be involved in supporting #AverysFight on #RareDiseaseDay?! Wouldn’t it be amazing the “likes” and “shares” your group could get on social media?! Order your #AverysFight apparel at this link, take a photo of your group on #RareDiseaseAwarenessDay and post it to social media (#Facebook, #Twitter, #Instagram). Send me your photos and I’ll post them on my blog as well as in all of my social media accounts. Help us spread awareness! How far can we reach? How many people will see our posts? Don’t forget to use the hashtags #RareDiseaseDay2016 #AverysFight #KnowFH PLEASE SHARE! Please let me know if I can share this on your timeline!
Avery’s Fight Fundraiser
Show your support for Avery and the whole Watts family with these great apparel items. Proceeds will help the family and the cause.
More info @ http://ift.tt/1OLvPZE
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 09, 2016 at 10:45AM
I’ve had a few people ask about shirt sizing for the #AverysFight apparel. We have other t-shirts from CustomInk and based on those they seem to run SMALL. They are unisex sizing, but I would say a Small would fit a woman’s size 0-4, Medium 6-10 or 12, Large 12/14/16, XL 18/20. These are just my best guess but I hope this helps with determining size. If in doubt I would size UP. If you have already placed an order and now are reconsidering size, I would contact CustomInk and ask that they change it for you before they ship. Thank you to everyone who has ordered! Please wear your shirts on #RareDiseaseDay2016 and send us a photo of you/your group!
Avery’s Fight Fundraiser
Show your support for Avery and the whole Watts family with these great apparel items. Proceeds will help the family and the cause.
More info @ http://ift.tt/1OLvPZE
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 07, 2016 at 08:17PM
Talk to your doctor! I hate to think about what the outcome could have been if I hadn’t requested a simple blood test. If there is a history of high cholesterol and/or heart disease in your family talk to your doctor about testing your children earlier.
The FH Foundation
Because high cholesterol can cause real damage to blood vessels over time and lead to heart disease and stroke, it’s recommended that all youth have their cholesterol checked between the ages of 9 and 11. Doctors may do it before or again based on risk, but the AAP wants to be sure that everyone gets checked at least once.
http://ift.tt/1ONWjcO
More info @ http://ift.tt/1ONWjcO
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 06, 2016 at 09:40PM
PICTURE THIS: your office, team, class, scouts, church group, restaurant, school, family, friends, etc. wearing their #AverysFight t-shirts and holding a flyer for joining hands around the world on FEBRUARY 29TH for #RareDiseaseDay2016! Wouldn’t it be awesome to see how many people could be involved in supporting #AverysFight on #RareDiseaseDay?! Wouldn’t it be amazing the “likes” and “shares” your group could get on social media?! Order your #AverysFight apparel at this link, take a photo of your group on #RareDiseaseAwarenessDay and post it to social media (#Facebook, #Twitter, #Instagram). Send me your photos and I’ll post them on my blog as well as in all of my social media accounts. Help us spread awareness! How far can we reach? How many people will see our posts? Don’t forget to use the hashtags #RareDiseaseDay2016 #AverysFight #KnowFH PLEASE SHARE! Please let me know if I can share this on your timeline!
Avery’s Fight Fundraiser
Show your support for Avery and the whole Watts family with these great apparel items. Proceeds will help the family and the cause.
More info @ http://ift.tt/1OLvPZE
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 06, 2016 at 08:42PM
Have you ordered your apparel to support #AverysFight yet? Order today to receive in time to wear for #RareDiseaseDay2016 on February 29th! Baby, Toddler, and KIDS sizes now available (use link below). #KnowFH #RDD2016
Avery’s Fight Fundraiser
Show your support for Avery and the whole Watts family with these great apparel items. Proceeds will help the family and the cause.
More info @ http://ift.tt/1OLvPZE
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 05, 2016 at 09:32PM
Have you ordered your apparel to support #AverysFight yet? Order today to receive in time to wear for #RareDiseaseDay2016 on February 29th! #KnowFH #RDD2016
Avery’s Fight Fundraiser Apparel
Show your support for Avery and the whole Watt’s family with these great apparel items. Proceeds will help the family and the cause.
More info @ http://ift.tt/1UfDZaA
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
January 04, 2016 at 07:53PM
THANK YOU David and Kimberly Klimek for their SECOND donation to help us support The FH Foundation and to Jeanie Hill Stark for your recent donation! We’re now at $3,910 of our goal. With just under four hours left in 2015, we’re trying to raise the last $1,090 to reach our goal. Will you help us? #KnowFH #HoFH #AverysFight
Fight FH | Michelle Watts’s Fundraiser
Please support us in helping the FH Foundation raise awareness of FH so more people with FH are diagnosed and treated.
More info @ http://ift.tt/1JeKxWE
Automated post from Avery’s Fight – http://ift.tt/1YdH55n
December 31, 2015 at 07:18PM
Avery's Fight 