Sharing a piece CNN did featuring friends of ours in the #raredisease community. The ADA is so important for children like Rob and Avery.đź’™

Opinion: The confirmation of Amy Coney Barrett is a threat to families like mine
Jeneva Stone, a mom of a disabled son, writes about what life was like for her family before the Affordable Care Act. She details how her family surfed the edge of financial ruin, ineligible in Maryland for a Medicaid waiver to assist with her son’s medical care.
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Automated post from Avery’s Fight – https://ift.tt/1YdH55n
October 20, 2020 at 12:33PM

Thank you to everyone who has reached out to us about helping with Avery’s next open-heart surgery. Please see and share link below! âť¤ď¸Ź

Avery’s Fight
Hello! If you’ve been following us for awhile, you know our now 12-year-old daughter, Avery, had a scheduled open-heart surgery this past January to correct supravalvular aortic stenosis in addition to several other issues. She initially was doing well after surgery but then started to decline. S…
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Automated post from Avery’s Fight – https://ift.tt/1YdH55n
October 16, 2020 at 10:29AM

Here’s a piece the Ronald McDonald House of Delaware just published on our family. Take a look! Thank you RMHOUSE of Delaware for sharing our story. (Please share!) âť¤ď¸Ź

The Watts Family Story – Ronald McDonald House of Delaware
When Avery Watts was 11 years old, she had a heart attack. At age 12, she has already had two open-heart surgeries. She and her family are preparing for
More info @ https://ift.tt/3j0KFfc
Automated post from Avery’s Fight – https://ift.tt/1YdH55n
October 14, 2020 at 05:35PM